In elementary school I had a trick I used to impress friends and others whom I desperately wanted to impress. I would jump into the air and land, on the sidewalk, on my bum, with knees together sideways and feet turned out. It sounds confusing, but it was impressive, trust me. Especially with the sidewalk element—kind of like tightrope walking without a net. I had the shock and awe factor down back in third grade.
In junior high, I won a toe-sucking contest at my best friend’s sleepover. You read that right. I managed to put my big toe in my mouth and keep it there longer than anyone else. Way longer. It wasn’t even difficult.
Do not ask me why we did this. I do not know whose idea it was or why we all complied, like the lemmings most junior high girls are. I only know I won an event that has very few bragging rights, since no one really wants to admit they excelled at a toe-sucking contest. Except, apparently, me. In my defense, it was junior high, and 1) Junior high humans do very, very strange things, plus 2) This was a pretty tame strange thing as far as junior high humans go.
In high school I wanted to be a cheerleader, and I had the required flexibility, obviously, but I lacked the voice. They told me I couldn’t yell loudly enough or project enough energy, and I bristled at that judgment then. Now, I know it was spot on. Who has the energy to yell over trivial things? Not this INFJ/Enneagram 5. Extraverts and 7’s, this is your territory. Be you.
My body told me decades before doctors did that it had some unusual qualities; I just thought they were normal.
Learning I have EDS (Ehlers-Danlos Syndrome) this past year has been one of the biggest jourenys-you-don’t-want-to-go-on of my life. I love traveling—but not this time. Sure, I’ve had it all my life and didn’t know it. Yes, I’ve been quite fortunate that the symptoms have only forced themselves into my life in the past couple years. Definitely, many, many people have it far worse. Nevertheless, those symptoms are a pain. Literally.
For those unfamiliar, I try to describe it this way. It’s like your joints don’t have brakes. When other peoples’ bodies tell them, “Whoa there, elbow, pull back a little. You’re going too far too fast,” mine don’t. They sit back and think, “Hey, can’t wait to see how far this will go without disaster. Hand me the popcorn.”
Everything goes too far; everything stretches too much; everything hurts. Yoga teachers are impressed. My physical therapist is not.
Most days I fight it. Some days I’m too tired. This is OK.
Often, I struggle because slow is not my groove. I walk fast, work fast, pack my calendar because fast works for me. Except now, walking fast could get my splayed on the ground with an injury, and I walk slowly, watching every sidewalk irregularity and holding on to every stair rail. I have to leave spaces in that datebook, empty whites places where blue ink used to fill, because feet up time is now at least as important as feet on the ground.
It irks me, because it’s not me.
I try to find the grace in the trade-off. And it’s there. This morning, the pink sunrise filtered through the treetops on my way home from dropping my offspring at the train station for work. I got home and wrote a haiku about it. I don’t write poetry. I’m pretty bad at it. Something in the morning told me I could, though, and that something, I think is the time I’ve lost being fast.
It seems antithetical, losing time by being fast. But I have. I‘ve lost the present. I’ve lost the ability to sit with the now and not make plans for the not yet. I’ve squanderer the moments in favor of the days. I’ve said “I don’t have time” so much that I believe it, even though who doesn’t have time for loved ones and silent hugs and sparkling eyes that want to tell you everything going on in their universe?
I’ve lived in the “going to” so much I’ve lost touch with the “is”—the pink of sunrise being combed out by tree fingers in the sky. I’m finding that I like the “is,” and perhaps that’s a gift of this inherited disease. It’s certainly a grace.
That’s one of the reasons my word for 2020 is “Listen.” Followed closely by “Observe.” I loathe passivity, in grammar and in life, but perhaps it’s time to embrace a bit of it. To sit, to watch, to hear, to be present.
Unlike everything else, it can’t hurt.